This website is part of the project 777259 /U-IMD which has received funding from the European Union’s Health Programme (2014-2020).
The content of this website represents the views of the author only and is his/her sole responsibility; it cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains.
The content of this website represents the views of the author only and is his/her sole responsibility; it cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains.
Participating centers
Number of partipicating centers: | 29 |
Number of all registered patients: | 3488 |
Number of active patients: | 3437 |
Please click on a center for more information...
Belgium
Bruxelles Hôpital Universitaire des Enfants Reine Fabiola | Registered patients - Total: 0 - Active: 0 | ▼ |
Antwerp University Hospital of Antwerp UZA | Registered patients - Total: 0 - Active: 0 | ▼ |
Bruxelles Cliniques universitaires Saint-Luc | Registered patients - Total: 108 - Active: 108 | ▼ |
Gosselies Centre Agréé des Maladies Héréditaires du Métabolisme | Registered patients - Total: 22 - Active: 22 | ▼ |
Leuven UZ Leuven | Registered patients - Total: 1 - Active: 1 | ▼ |
Liege Metabolic Unit - Department of Medical Genetics CHU Liège | Registered patients - Total: 55 - Active: 55 | ▼ |
Czech Republic
Prague 2 General University Hospital in Prague | Registered patients - Total: 733 - Active: 733 | ▼ |
Germany
Freiburg UNIVERSITÄTSKLINIKUM FREIBURG | Registered patients - Total: 0 - Active: 0 | ▼ |
Heidelberg University Hospital Heidelberg | Registered patients - Total: 704 - Active: 691 | ▼ |
Magdeburg Otto-von-Guericke-University Med.Faculty, Central-German Network for rare diseases | Registered patients - Total: 10 - Active: 10 | ▼ |
Denmark
Copenhagen Copenhagen University Hospital, Rigshospitalet | Registered patients - Total: 0 - Active: 0 | ▼ |
Spain
Barakaldo Hospital Universitario Cruces | Registered patients - Total: 3 - Active: 3 | ▼ |
Barcelona Hospital Sant Joan De Déu | Registered patients - Total: 200 - Active: 197 | ▼ |
Barcelona Hospital Universitari Vall d´Hebron | Registered patients - Total: 1 - Active: 1 | ▼ |
Madrid Hospital Universitario 12 de Octubre | Registered patients - Total: 450 - Active: 448 | ▼ |
Santiago de Compostela Hospital Clínico Universitario de Santiago | Registered patients - Total: 60 - Active: 60 | ▼ |
France
Rennes CHU de Rennes Hôpital SUD | Registered patients - Total: 1 - Active: 1 | ▼ |
Hungary
Szeged University of Szeged, Faculty of Medicine | Registered patients - Total: 0 - Active: 0 | ▼ |
Italy
Monza Fondazione IRCCS San Gerardo dei Tintori | Registered patients - Total: 4 - Active: 4 | ▼ |
Padova Azienda Ospedale Universita Padova | Registered patients - Total: 101 - Active: 101 | ▼ |
Rome Ospedale Pediatrico Bambino Gesù | Registered patients - Total: 692 - Active: 659 | ▼ |
Udine University Hospital of Udine | Registered patients - Total: 97 - Active: 97 | ▼ |
Verona Azienda Ospedaliera Università Integrata | Registered patients - Total: 74 - Active: 74 | ▼ |
Norway
Oslo Oslo University Hospital | Registered patients - Total: 152 - Active: 152 | ▼ |
Poland
Krakow Krakow University Hospital | Registered patients - Total: 4 - Active: 4 | ▼ |
Portugal
Guimarães Hospital da Senhora da Oliveira Guimarães | Registered patients - Total: 1 - Active: 1 | ▼ |
Lisboa Unidade Local de Saúde de Santa Maria (ULSSM) | Registered patients - Total: 13 - Active: 13 | ▼ |
Porto Centro Materno Infantil do Norte | Registered patients - Total: 2 - Active: 2 | ▼ |
Slovenia
Ljubljana UNIVERSITY MEDICAL CENTRE LJUBLJANA | Registered patients - Total: 0 - Active: 0 | ▼ |