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Participating centers
Number of partipicating centers: | 17 |
Number of all registered patients: | 1512 |
Number of active patients: | 1510 |
Please click on a center for more information...
Belgium
Bruxelles Hôpital Universitaire des Enfants Reine Fabiola | Registered patients - Total: 0 - Active: 0 | ▼ |
Antwerp University Hospital of Antwerp UZA | Registered patients - Total: 0 - Active: 0 | ▼ |
Czech Republic
Prague 2 General University Hospital in Prague | Registered patients - Total: 614 - Active: 614 | ▼ |
Germany
Heidelberg University Hospital Heidelberg | Registered patients - Total: 348 - Active: 346 | ▼ |
Magdeburg Otto-von-Guericke-University Med.Faculty, Central-German Network for rare diseases | Registered patients - Total: 0 - Active: 0 | ▼ |
Spain
Barakaldo Hospital Universitario Cruces | Registered patients - Total: 2 - Active: 2 | ▼ |
Barcelona Hospital Sant Joan De Déu | Registered patients - Total: 116 - Active: 116 | ▼ |
Madrid Hospital Universitario 12 de Octubre | Registered patients - Total: 15 - Active: 15 | ▼ |
Santiago de Compostela Hospital Clínico Universitario de Santiago | Registered patients - Total: 1 - Active: 1 | ▼ |
Hungary
Szeged University of Szeged, Faculty of Medicine | Registered patients - Total: 0 - Active: 0 | ▼ |
Italy
Rome Ospedale Pediatrico Bambino Gesù | Registered patients - Total: 340 - Active: 340 | ▼ |
Udine University Hospital of Udine | Registered patients - Total: 36 - Active: 36 | ▼ |
Verona Azienda Ospedaliera Università Integrata | Registered patients - Total: 0 - Active: 0 | ▼ |
Norway
Oslo Oslo University Hospital | Registered patients - Total: 34 - Active: 34 | ▼ |
Poland
Krakow Krakow University Hospital | Registered patients - Total: 4 - Active: 4 | ▼ |
Portugal
Guimarães Hospital da Senhora da Oliveira Guimarães | Registered patients - Total: 1 - Active: 1 | ▼ |
Porto Centro Materno Infantil do Norte | Registered patients - Total: 1 - Active: 1 | ▼ |