This website is part of the project 777259 /U-IMD which has received funding from the European Union’s Health Programme (2014-2020).
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Participating centers
| Number of partipicating centers: | 35 |
| Number of all registered patients: | 3853 |
| Number of active patients: | 3793 |
Please click on a center for more information...
Belgium
| Bruxelles Hôpital Universitaire des Enfants Reine Fabiola | Registered patients - Total: 1 - Active: 1 | ▼ |
| Antwerp University Hospital of Antwerp UZA | Registered patients - Total: 0 - Active: 0 | ▼ |
| Bruxelles Cliniques universitaires Saint-Luc | Registered patients - Total: 125 - Active: 125 | ▼ |
| Gosselies Centre Agréé des Maladies Héréditaires du Métabolisme | Registered patients - Total: 23 - Active: 23 | ▼ |
| Leuven UZ Leuven | Registered patients - Total: 1 - Active: 1 | ▼ |
| Liege Metabolic Unit - Department of Medical Genetics CHU Liège | Registered patients - Total: 89 - Active: 88 | ▼ |
Brazil
| Porto Alegre - Rio Grande do Sul Casa dos Raros - Centro de Atenção Integral e Treinamento em Doenças Raras | Registered patients - Total: 0 - Active: 0 | ▼ |
Czech Republic
| Prague 2 General University Hospital in Prague | Registered patients - Total: 733 - Active: 733 | ▼ |
Germany
| Freiburg UNIVERSITÄTSKLINIKUM FREIBURG | Registered patients - Total: 0 - Active: 0 | ▼ |
| Heidelberg University Hospital Heidelberg | Registered patients - Total: 918 - Active: 900 | ▼ |
| Magdeburg Otto-von-Guericke-University Med.Faculty, Central-German Network for rare diseases | Registered patients - Total: 10 - Active: 10 | ▼ |
Denmark
| Copenhagen Copenhagen University Hospital, Rigshospitalet | Registered patients - Total: 0 - Active: 0 | ▼ |
Spain
| Barakaldo Hospital Universitario Cruces | Registered patients - Total: 3 - Active: 3 | ▼ |
| Barcelona Hospital Sant Joan De Déu | Registered patients - Total: 200 - Active: 197 | ▼ |
| Barcelona Hospital Universitari Vall d´Hebron | Registered patients - Total: 2 - Active: 2 | ▼ |
| Madrid Hospital Universitario 12 de Octubre | Registered patients - Total: 499 - Active: 494 | ▼ |
| Santiago de Compostela Hospital Clínico Universitario de Santiago | Registered patients - Total: 60 - Active: 60 | ▼ |
France
| Rennes CHU de Rennes Hôpital SUD | Registered patients - Total: 1 - Active: 1 | ▼ |
Hungary
| Szeged University of Szeged, Faculty of Medicine | Registered patients - Total: 0 - Active: 0 | ▼ |
Italy
| Firenze Azienda Ospedaliero-Universitaria Meyer | Registered patients - Total: 0 - Active: 0 | ▼ |
| Florence University Hospital Careggi | Registered patients - Total: 0 - Active: 0 | ▼ |
| Monza Fondazione IRCCS San Gerardo dei Tintori | Registered patients - Total: 33 - Active: 33 | ▼ |
| Napoli Azienda Ospedaliera Universitaria Federico II | Registered patients - Total: 3 - Active: 3 | ▼ |
| Padova Azienda Ospedale Universita Padova | Registered patients - Total: 101 - Active: 101 | ▼ |
| Rome Ospedale Pediatrico Bambino Gesù | Registered patients - Total: 692 - Active: 659 | ▼ |
| Udine University Hospital of Udine | Registered patients - Total: 101 - Active: 101 | ▼ |
| Verona Azienda Ospedaliera Università Integrata | Registered patients - Total: 74 - Active: 74 | ▼ |
Norway
| Oslo Oslo University Hospital | Registered patients - Total: 157 - Active: 157 | ▼ |
Poland
| Krakow Krakow University Hospital | Registered patients - Total: 4 - Active: 4 | ▼ |
| Warsaw The Institute of Mother and Child | Registered patients - Total: 0 - Active: 0 | ▼ |
Portugal
| Coimbra Centro Referência de Doenças Hereditárias do Metabolismo da Unidade Local de Saúde de Coimbra | Registered patients - Total: 2 - Active: 2 | ▼ |
| Guimarães Hospital da Senhora da Oliveira Guimarães | Registered patients - Total: 1 - Active: 1 | ▼ |
| Lisboa Unidade Local de Saúde de Santa Maria (ULSSM) | Registered patients - Total: 13 - Active: 13 | ▼ |
| Porto Centro Hospitalar Universitário de Santo António | Registered patients - Total: 4 - Active: 4 | ▼ |
Slovenia
| Ljubljana UNIVERSITY MEDICAL CENTRE LJUBLJANA | Registered patients - Total: 3 - Active: 3 | ▼ |