This website is part of the project 777259 /U-IMD which has received funding from the European Union’s Health Programme (2014-2020).
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Participating centers
| Number of partipicating centers: | 19 |
| Number of all registered patients: | 1886 |
| Number of active patients: | 1881 |
Please click on a center for more information...
Belgium
| Bruxelles Hôpital Universitaire des Enfants Reine Fabiola | Registered patients - Total: 0 - Active: 0 | ▼ |
| Antwerp University Hospital of Antwerp UZA | Registered patients - Total: 0 - Active: 0 | ▼ |
Czech Republic
| Prague 2 General University Hospital in Prague | Registered patients - Total: 695 - Active: 695 | ▼ |
Germany
| Heidelberg University Hospital Heidelberg | Registered patients - Total: 386 - Active: 384 | ▼ |
| Magdeburg Otto-von-Guericke-University Med.Faculty, Central-German Network for rare diseases | Registered patients - Total: 2 - Active: 2 | ▼ |
Spain
| Barakaldo Hospital Universitario Cruces | Registered patients - Total: 2 - Active: 2 | ▼ |
| Barcelona Hospital Sant Joan De Déu | Registered patients - Total: 200 - Active: 197 | ▼ |
| Madrid Hospital Universitario 12 de Octubre | Registered patients - Total: 15 - Active: 15 | ▼ |
| Santiago de Compostela Hospital Clínico Universitario de Santiago | Registered patients - Total: 1 - Active: 1 | ▼ |
Hungary
| Szeged University of Szeged, Faculty of Medicine | Registered patients - Total: 0 - Active: 0 | ▼ |
Italy
| Monza Ufficio Sperimentazioni Cliniche Fondazione MBBM Onlus | Registered patients - Total: 0 - Active: 0 | ▼ |
| Rome Ospedale Pediatrico Bambino Gesù | Registered patients - Total: 454 - Active: 454 | ▼ |
| Udine University Hospital of Udine | Registered patients - Total: 47 - Active: 47 | ▼ |
| Verona Azienda Ospedaliera Università Integrata | Registered patients - Total: 10 - Active: 10 | ▼ |
Norway
| Oslo Oslo University Hospital | Registered patients - Total: 59 - Active: 59 | ▼ |
Poland
| Krakow Krakow University Hospital | Registered patients - Total: 4 - Active: 4 | ▼ |
Portugal
| Guimarães Hospital da Senhora da Oliveira Guimarães | Registered patients - Total: 1 - Active: 1 | ▼ |
| Lisboa Centro Hospitalar Universitário Lisboa Norte (CHLN) | Registered patients - Total: 9 - Active: 9 | ▼ |
| Porto Centro Materno Infantil do Norte | Registered patients - Total: 1 - Active: 1 | ▼ |