REGISTRY

EU This website is part of the project 777259 /U-IMD which has received funding from the European Union’s Health Programme (2014-2020).

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Participating centers

Number of partipicating centers: 15
Number of all registered patients: 1140
Number of active patients: 1139

Please click on a center for more information...

Belgium
Antwerp
University Hospital of Antwerp UZA
Registered patients - Total: 0 - Active: 0
Czech Republic
Prague 2
General University Hospital in Prague
Registered patients - Total: 486 - Active: 486
Germany
Heidelberg
University Hospital Heidelberg
Registered patients - Total: 296 - Active: 295
Magdeburg
Otto-von-Guericke-University Med.Faculty, Central-German Network for rare diseases
Registered patients - Total: 0 - Active: 0
Spain
Barakaldo
Hospital Universitario Cruces
Registered patients - Total: 2 - Active: 2
Barcelona
Hospital Sant Joan De Déu
Registered patients - Total: 71 - Active: 71
Madrid
Hospital Universitario 12 de Octubre
Registered patients - Total: 15 - Active: 15
Santiago de Compostela
Hospital Clínico Universitario de Santiago
Registered patients - Total: 1 - Active: 1
Hungary
Szeged
University of Szeged, Faculty of Medicine
Registered patients - Total: 0 - Active: 0
Italy
Rome
Ospedale Pediatrico Bambino Gesù
Registered patients - Total: 245 - Active: 245
Udine
University Hospital of Udine
Registered patients - Total: 5 - Active: 5
Norway
Oslo
Oslo University Hospital
Registered patients - Total: 14 - Active: 14
Poland
Krakow
Krakow University Hospital
Registered patients - Total: 3 - Active: 3
Portugal
Guimarães
Hospital da Senhora da Oliveira Guimarães
Registered patients - Total: 1 - Active: 1
Porto
Centro Materno Infantil do Norte
Registered patients - Total: 1 - Active: 1