REGISTRY

EU This website is part of the project 777259 /U-IMD which has received funding from the European Union’s Health Programme (2014-2020).

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Participating centers

Number of partipicating centers: 29
Number of all registered patients: 3488
Number of active patients: 3437

Please click on a center for more information...

Belgium
Bruxelles
Hôpital Universitaire des Enfants Reine Fabiola
Registered patients - Total: 0 - Active: 0
Antwerp
University Hospital of Antwerp UZA
Registered patients - Total: 0 - Active: 0
Bruxelles
Cliniques universitaires Saint-Luc
Registered patients - Total: 108 - Active: 108
Gosselies
Centre Agréé des Maladies Héréditaires du Métabolisme
Registered patients - Total: 22 - Active: 22
Leuven
UZ Leuven
Registered patients - Total: 1 - Active: 1
Liege
Metabolic Unit - Department of Medical Genetics CHU Liège
Registered patients - Total: 55 - Active: 55
Czech Republic
Prague 2
General University Hospital in Prague
Registered patients - Total: 733 - Active: 733
Germany
Freiburg
UNIVERSITÄTSKLINIKUM FREIBURG
Registered patients - Total: 0 - Active: 0
Heidelberg
University Hospital Heidelberg
Registered patients - Total: 704 - Active: 691
Magdeburg
Otto-von-Guericke-University Med.Faculty, Central-German Network for rare diseases
Registered patients - Total: 10 - Active: 10
Denmark
Copenhagen
Copenhagen University Hospital, Rigshospitalet
Registered patients - Total: 0 - Active: 0
Spain
Barakaldo
Hospital Universitario Cruces
Registered patients - Total: 3 - Active: 3
Barcelona
Hospital Sant Joan De Déu
Registered patients - Total: 200 - Active: 197
Barcelona
Hospital Universitari Vall d´Hebron
Registered patients - Total: 1 - Active: 1
Madrid
Hospital Universitario 12 de Octubre
Registered patients - Total: 450 - Active: 448
Santiago de Compostela
Hospital Clínico Universitario de Santiago
Registered patients - Total: 60 - Active: 60
France
Rennes
CHU de Rennes Hôpital SUD
Registered patients - Total: 1 - Active: 1
Hungary
Szeged
University of Szeged, Faculty of Medicine
Registered patients - Total: 0 - Active: 0
Italy
Monza
Fondazione IRCCS San Gerardo dei Tintori
Registered patients - Total: 4 - Active: 4
Padova
Azienda Ospedale Universita Padova
Registered patients - Total: 101 - Active: 101
Rome
Ospedale Pediatrico Bambino Gesù
Registered patients - Total: 692 - Active: 659
Udine
University Hospital of Udine
Registered patients - Total: 97 - Active: 97
Verona
Azienda Ospedaliera Università Integrata
Registered patients - Total: 74 - Active: 74
Norway
Oslo
Oslo University Hospital
Registered patients - Total: 152 - Active: 152
Poland
Krakow
Krakow University Hospital
Registered patients - Total: 4 - Active: 4
Portugal
Guimarães
Hospital da Senhora da Oliveira Guimarães
Registered patients - Total: 1 - Active: 1
Lisboa
Unidade Local de Saúde de Santa Maria (ULSSM)
Registered patients - Total: 13 - Active: 13
Porto
Centro Materno Infantil do Norte
Registered patients - Total: 2 - Active: 2
Slovenia
Ljubljana
UNIVERSITY MEDICAL CENTRE LJUBLJANA
Registered patients - Total: 0 - Active: 0