This website is part of the project 777259 /U-IMD which has received funding from the European Union’s Health Programme (2014-2020).
The content of this website represents the views of the author only and is his/her sole responsibility; it cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains.
Participating centers
| Number of partipicating centers: | 15 |
| Number of all registered patients: | 1244 |
| Number of active patients: | 1243 |
Please click on a center for more information...
Belgium
| Antwerp University Hospital of Antwerp UZA | Registered patients - Total: 0 - Active: 0 | ▼ |
Czech Republic
| Prague 2 General University Hospital in Prague | Registered patients - Total: 486 - Active: 486 | ▼ |
Germany
| Heidelberg University Hospital Heidelberg | Registered patients - Total: 342 - Active: 341 | ▼ |
| Magdeburg Otto-von-Guericke-University Med.Faculty, Central-German Network for rare diseases | Registered patients - Total: 0 - Active: 0 | ▼ |
Spain
| Barakaldo Hospital Universitario Cruces | Registered patients - Total: 2 - Active: 2 | ▼ |
| Barcelona Hospital Sant Joan De Déu | Registered patients - Total: 82 - Active: 82 | ▼ |
| Madrid Hospital Universitario 12 de Octubre | Registered patients - Total: 15 - Active: 15 | ▼ |
| Santiago de Compostela Hospital Clínico Universitario de Santiago | Registered patients - Total: 1 - Active: 1 | ▼ |
Hungary
| Szeged University of Szeged, Faculty of Medicine | Registered patients - Total: 0 - Active: 0 | ▼ |
Italy
| Rome Ospedale Pediatrico Bambino Gesù | Registered patients - Total: 257 - Active: 257 | ▼ |
| Udine University Hospital of Udine | Registered patients - Total: 27 - Active: 27 | ▼ |
Norway
| Oslo Oslo University Hospital | Registered patients - Total: 27 - Active: 27 | ▼ |
Poland
| Krakow Krakow University Hospital | Registered patients - Total: 3 - Active: 3 | ▼ |
Portugal
| Guimarães Hospital da Senhora da Oliveira Guimarães | Registered patients - Total: 1 - Active: 1 | ▼ |
| Porto Centro Materno Infantil do Norte | Registered patients - Total: 1 - Active: 1 | ▼ |